So, after a week at home, during which Sophie's fever reappeared, we checked back into the hospital for another 2 week stay. During the week we were home, Sophie's body went back to normal. Apparently the docs consider a jump in liver function from mid-20s to over 800 to be "slightly elevated." Of course I didn't find this out until I met with them 5 days after being readmitted with no medication starting up.
The newest information is that there are 2 drugs in the regimen for TB that can cause hepatitis. That is why as soon as her liver test came back abnormal, they removed her from all medication. Now we have stopped both of those medications. The problem (of sorts) is that before she was taking 4 drugs in one pill once a day, but two of those drugs were the liver affecting ones. In order to not take those, now she is on an IV drip twice a day and has to take 3 pills 3 times a day. Sophie is taking it all in stride though, and she is happy that these pills are so much smaller and easier to swallow.
Today marks two weeks of being back in the hospital and last Friday was one week into her IV antibiotic treatment. If all goes well, this coming Friday (Nov 4) she will finish the IV, they will test her sputum and blood as well as do a chest x-ray and if her tests come back at a level 0 for infection, we will get to go home on Monday, where she will continue to take pills for the next 4 months. At this point, they want to reintroduce one of the liver affecting pills in a smaller dose to see if she can handle it.
Happily, she has gained 4 kilos back, which was a prerequisite for us going home, so I'm excited about that. Also, her fevers have stopped, so the infection is definitely diminishing, if not gone already. I'll post separately about the amazing time we had at camp with Taw Saeng as well as getting to go to the Yee Pang festival and see thousands of lanterns sent into the sky at once, a la Tangled!
The newest information is that there are 2 drugs in the regimen for TB that can cause hepatitis. That is why as soon as her liver test came back abnormal, they removed her from all medication. Now we have stopped both of those medications. The problem (of sorts) is that before she was taking 4 drugs in one pill once a day, but two of those drugs were the liver affecting ones. In order to not take those, now she is on an IV drip twice a day and has to take 3 pills 3 times a day. Sophie is taking it all in stride though, and she is happy that these pills are so much smaller and easier to swallow.
Today marks two weeks of being back in the hospital and last Friday was one week into her IV antibiotic treatment. If all goes well, this coming Friday (Nov 4) she will finish the IV, they will test her sputum and blood as well as do a chest x-ray and if her tests come back at a level 0 for infection, we will get to go home on Monday, where she will continue to take pills for the next 4 months. At this point, they want to reintroduce one of the liver affecting pills in a smaller dose to see if she can handle it.
Happily, she has gained 4 kilos back, which was a prerequisite for us going home, so I'm excited about that. Also, her fevers have stopped, so the infection is definitely diminishing, if not gone already. I'll post separately about the amazing time we had at camp with Taw Saeng as well as getting to go to the Yee Pang festival and see thousands of lanterns sent into the sky at once, a la Tangled!
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